Cancer Patients Facing Huge Bills
By Joe Rodriguez Mercury News, Local News Tuesday, September 8, 2009
Nonprofit FamiliesCan finds itself short of funds because the need is so great. |
Trisha Faggiolly-Barrett lay still on a
long table as "Sky" enveloped her from
head to toe. Nicknamed by the nuclear
medicine technicians at Stanford Medical
Center, the huge, X·
ray-like camera is looking
inside her bones for
traces of cancer.
"What did I do
wrong in this life to
deserve this?" Faggiolly
asks.
She's already lost a
breast, lymph nodes, her job and private
health insurance. And something immeasurably tragic: She was four months
pregnant in April 2007 when she learned
she had breast cancer.
And yet, sitting later in the cafeteria, she beams with a toothy smile and a pair
of happy, almond-shaped eyes. It's her
husband, Oak Barrett, who looks worn
out. After she got cancer, he lost his
high-tech sales job earlier this year and
the family health insurance that came
with it.
"Suffice it to say," Barrett deadpans, "this has been the most interesting year of my life."
VITAL SOURCE OF HELP It's been a wrenching, curious year for Jackie Whittier Kubicka, too. She founded and runs Families Can, a modest but unique program based in Los Altos that helps cancer-stricken families in Silicon Valley pay the bills and stay in their homes.
She set up the nonprofit charity nine
years ago after liver cancer threatened
her husband, Bruce Kubicka. He survived,
but Whittier found herself almost
as overwhelmed as the less-fortunate
families she met in hospital waiting
rooms. She persuaded her father, former
Intel executive Ron Whittier, to fund
FamiliesCan through his foundation.
The program doesn't cover astronomical
medical bills like the estimated
$10,000 for Faggiolly's nuclear bone
scan, which was paid for by a limited Medi-Cal program for breast cancer patients. FamiliesCan is simple but varied covering such vitals as rent, mortgage or insurance payments for a month or so. It has
helped hire baby sitters and
pay groceries, utility bills
or car payments. The average assistance per family is
about $4,000.
Families Can so far has
covered the Faggiolly-Barrett's
mortgage for their
house in Redwood City and
parking expenses at the hospital.
It's sending Faggiolly
on an oceanfront retreat for
women with cancer.
"We're lucky and blessed
to have met them," Faggiolly says.
Whittier set up the charity
to cover about 52 families
per year for 20 years.
The math has worked fine until now; with the troubled economy, applications
jumped to 63 in 2008, with
more expected this year.
"Wow, what's going on?" Whittier wondered."Very seldom do we have to turn anybody away."
What happened was the so-called Great Recession that started in December 2007. Before that, most applicants to the foundation were employed people who became sick with cancer,
then lost their jobs and
health coverage several
months or even years inter. Today the order is reversed,
Whittier says. She's getting
more applications from
people who lost their jobs
first or about the same time they got cancer.
DOWN, ALMOST OUT Scott
Musladin lives in
South San Jose with his
wife, Candy, their young
daughter, Madison. and a
teenage niece, Lindsey. The couple met on
the job and married in 1986.
In November. doctors discovered cancer in his stomach. When they opened him up, they found another, more vicious form of cancer in his abdomen. He would need aggressive treatment, including chemotherapy. for months.
A short time later, in
February, the damage-restoration
company where the
couple had worked for years
shut down for lack of business.
Candy Musladin found part-time work, but their
income dropped to about
$23,000, roughly a third of what they once brought home.
'"I felt like I was down
and somebody was kicking
me over and over again," Scott Musladin says. "and I
didn't know if it would ever stop." Fortunately, he was able
to keep his health insurance but paying ordinary expenses was another matter. In stepped FamiliesCan. The charity has
covered a few months rent for their home and gave them a $600 supermarket
gift card for groceries. It's sending their daughter to
a camp that teaches the
children of cancer patients
to understand and cope with
the disease.
"After a lot of crying and feeling panicked, we have peace of mind," Candy Musladin says.
But ironically. peace of mind is running out for Jackie Whittier and
FamiliesCan. Its endowment
took a hit in the stock
market crash, and a bounce back
isn't going to happen
soon. The options are grim.
"We can run out of
money early, cut grants or
deny some applications," Whittier said. She already
has canceled the charity's
annual holiday dinner and
replaced it with a simple
gathering over ice cream.
"It would be too hard to determine who not to fund. They are all equally needy."